1. What is your cancer story?
I was diagnosed with Bladder cancer or as I like to call it "high grade Urothelial Carcinoma with Syncytiotrophoblastic cells" in October of 2015. I was 33 at the time which is extremely rare as most bladder cancer is found in people over 70. I had many surgeries and chemotherapy.
Throughout most of this time I was told I would have my entire bladder removed and replaced with a "neo bladder" or a bag I would wear externally but in the end I was lucky enough to have a surgery to remove one third of my own bladder.
The cancer stayed away for about 6 months but then during one of my regular check ups it was discovered I had a golf ball sized tumour in my lung. This was then operated on by removing one third of the top lobe of my right lung and confirmed to be Urothelial Cancer that had spread but again I was cancer free.
Three months after that it was back in my lung and now in my hip bone and I'm in an "immunotherapy" trial.
2. What treatment did you have/ or are having, and how did/has it affect you?
I have had many surgeries up to this point, three months of chemotherapy and am now in an immunotherapy trial. It has affected me in many ways and has left me with some permanent and temporary physical side effects.
The permanent side effects I have include:
Current side (hopefully temporary) effects:
Other than these there has been a lot of psychological impacts for myself. my family and my girlfriend as well as just the general stress of trying to schedule and pay for all the medical procedures while trying to continue a "normal" life.
3. What has cancer research and/or early detection meant for you?
Early detection meant that I got to keep my own bladder (well two thirds of it) instead of wearing an external bag or installing a "neo Bladder"
As far as cancer research goes I'm actually taking part in it as my current immunotherapy is a trial of a third generation drug. If this trail wasn't available to me for free I would be paying $4000 every three weeks for the drug so it would mean my entire life's savings would be depleted rapidly
4. What is your cancer research 'wish' e.g what do you hope they cure/treat?
Ummm..... I hope they cure MY cancer... and soon! But I guess a realistic wish would be that even if they can't cure certain types of cancer that they continue to find ways to treat and manage it without making peoples lives horrible ie chemotherapy.
5. Is there anything you wish to share with our readers?
My podcast "scott got cancer" can be found on iTunes or my website but it is 18+ as we discuss the grosser points of cancer and surgery and swear a lot.